8 Comments
User's avatar
liz's avatar

Accurate! I was diagnosed with RRMS at 25. Had three kids by 31 and felt great while pregnant and between pregnancies. Ran marathons and was able to keep up with everything I wanted to do in my life and then a quick hormone shift of perimenopause at 33 into menopause nearly killed me…had every symptom in the book (brain fog, migraines, sleep loss, weight gain, anxiety, fatigue, no libido and busted parts, dry skin & hair, cystic acne, joint pain, vision change, and depression and moodiness). Suffered for years before I found a doctor who would treat me for early menopause, but now that I’m on HRT I feel like I’m slowly coming back to myself. In my experience the right hormones are life-giving.

Expand full comment
liz's avatar

should add i’m now 44 and on Tysabri with no relapses or lesions since 2009, no permanent damage from prior relapses, and maintain full mobility.

Expand full comment
Theresa's avatar

Great to see this information being shared, as a person with MS, trying to explain what it is, what it does and how that affects me is frustrating and at times exhausting. Another thing to note, is that the majority of people with MS do not progress to having to use a wheelchair.

Expand full comment
Alex's avatar

Great article! I did not know too much about MS but now I am educated. Thanks Sam!

Expand full comment
Bill Suefert's avatar

I have MS for 25 years since my diagnosis and another ten trying to get a diagnosis I ve seen it go from no treatment to a scope of treatments my vision is mostly affected and my thinking has slowed down but each day is a fight hopefully now that I’m in my sixties it’s supposed to deminish in it’s disabling effects…..I hope so going blind is not my favorite thing to do.

Expand full comment
Jane Harrison's avatar

Thank you for drawing attention to MS 😊

Expand full comment
Shirley Givens's avatar

I was diagnosed with Multiple Sclerosis in 2010 and put on Avonex immediately. I also discovered the Swank MS diet and went on it soon after being diagnosed. A few years later, my liver enzymes were affected and my neurologist said she had other patients who were just on the Swank diet, so I went off the Avonex and have just been on MS-4 treatment from uinehealthcentre for several months now, 15 years after my diagnosis, my annual MRI shows no additional lesions, and I have no disability. All my symptoms declined. I work as a realtor and interior designer and am on my feet all day. I am 68 and going strong. Anyone who reads this I got the treatment from uinehealthcentre. net

Expand full comment
Made Strong's avatar

I had my first symptom at 15 years old with optic neuritis ,but was not diagnosed until 20 years old. Happy to connect with everyone raising awareness. #MadeStrong

Expand full comment